Time Limit 8 July 2015

LUMOS (Other names
CHILDREN'S HIGH LEVEL GROUP (OLD NAME)
LUMOS (WORKING NAME)):
http://apps.charitycommission.gov.uk/Sho...

Where it operates
BULGARIA
CZECH REPUBLIC
HAITI
MOLDOVA
UKRAINE
UNITED STATES OF AMERICA
and United Kingdom.

Income 4 475 958 British Pound - 5 Mio Euro.

Activities:
LUMOS WORKS TO TRANSFORM THE LIVES OF DISADVANTAGED CHILDREN BY FACILITATING THE END OF INSTITUTIONAL CARE FOR GOOD. IT DOES THIS IN TWO WAYS:
AT A POLICY LEVEL TO ACCELERATE AND IMPROVE THE QUALITY OF REFORM IN HEALTH, EDUCATION AND SOCIAL PROTECTION SERVICES
AT A PRACTICAL LEVEL WORKING WITH PROVIDERS OF CHILDREN'S SERVICES TO DEMONSTRATE THE VALUE OF FAMILY-BASED CARE

Question: International Adoptions ?

Lumos is in excellent financial health. At the end of 2012, Lumos had £11,901,488 in reserves. This represents nearly three years’ reserves, giving ample opportunity to develop other streams of income. Lumos invests its reserves with an annual return of approximately 4%.

http://apps.charitycommission.gov.uk/Acc...

Extracts from Linked document:
President J K Rowling - (the famous Author ?) (Resigned on 27th Sept 2013)

BJEllis (Treasurer) Dr K Behbehani
Sir R Singleton CBE
A H Loder L F Smith
N L M Blair R L Wilson R Dattani
N Crichton
D Cohen (From June 2013)

Step 5 - Before the institution doors have closed - we support: Returning of children to biological families
Foster care or adoption
+ Specialist medical care for the most vulnerable
Inclusive education for all children in mainstream schools

Programmes
«To continue and complete our deinstitutionalisation
programme in Moldova.
«To continue to develop and deliver our programmes in the Czech Republic, Bulgadia and Ukraine.
«To consider and take forward the options for expanding our coverage to include three 'direct, intensive' and three 'indirect, technical assistance' programmes, with particular consideration being given to Hungary, Serbia and Georgia.

Expert Advice
«To set up and make best use of an Expert Advisory Group of professionals and
researchers.
+ To continue to play a full and independent role in the European Expert Group (of international NGOs and networks), which provides advice on deinstitutionalisation to the European Commission.

Achievements at the international level
- Lumos co-hosted a conference on deinstitutionalisation
at the European Parliament, with Adam Kosa MEP, that commemorated 50 years since the Kennedy law kick-started Dl in the US for people with disabilities. This was a sharing of US and European
experience in Dl and a call to action to work together internationally to end institutionalisation.
- Advocacy and diplomatic lobbying by Lumos, with other organisations, led to the passing of legal regulations in the European Parliament in November 2013 which meant that Structural Funds granted to EU Member States for social cohesion purposes could no longer be used for building or renovating institutions but had to be spent on alternative family and community-based systems of care. These conditions will influence the use of billions of Euros in EU aid. The period of 'awareness raising' up to the passing of the new regulations had already ensured that 6367m in Structural Funds, awarded before November 2013, was spent on dismantling institutions and not building new ones.
- Lumos engaged with US government departments and joined the Leaders Council on the Global Alliance for Children —an international coalition of government agencies, foundations and expert groups.

Lumno' workin 2013-key facts and figures (continued)
Achievements at the national end local level
+ 51 million was raised at a fundraising event in November 2013 hosted by J.K. Rowling.

Advocacy by Lumos led to a decision by the Romanian Government to follow the Bulgarian Govemrnent's example —also influenced by Lumos —to agree to fund life- saving shunts for children with hydrocephalus from 2014. The Romanian decision was announced at a Lumos conference in Bulgaria.
Lumos hosted a major inclusive education conference held in Moldova.
Laloveni children's institution in one of Lumos' demonstration areas in Moldova closed.
Lumos carried out a successful strategic review to assess the number of children living in institutions in Ukraine.
Lumos supported the creation of the Coalition 2025, an active group of NGOs in Bulgada working to support the national deinstitutionalisation programme.
Lumos provided training and consultancy to state officials in Bulgaria to undertake case conferences for children with disabilities in institutions, to assess each child's needs and where they should be placed; and in preparing children to move out of institutions and into the new services.
In the Czech Republic, Lumos helped to ensure the assessment framework established for social workers to better assess children was rolled out across that country.
+ A total of 77 policy makers and senior managers attended eight Lumos study visits throughout the year, including the first 'Advanced Course on Deinstitutionalisation' in
August 2013.
Lumos, through its Remote Expert Support Services (RESS)team, trained over 6,000 people - including care workers, teachers, psychologists, social workers, health professionals, policy makers and funders —in a range of aspects of family and community-based care systems. This brought the total to 15,713 people trained in four years.

Achievements forindividual children
Lumos teams directly prevented 244 children from entering into institutions and
influenced thousands more individual cases where institutionalisation
- Lumos saved the lives of 459 children suffering from malnutrition and neglect.
- A total of 413 children programmes.
was considered.
and young people took part in Lumos' child participation
- 187 children with hydrocephalus received life-saving surgery. A total of 311 children have been saved in two years as a result of Lumos' advocacy work.
- A total of 472 children with special educational needs were directly supported by Lumos to enter mainstream education in schools in Moldova - contributing to the overall total of
more than 3,500 children in Moldvova being educated in their communities, alongside their peers.
- By the end of 2013, Lumos had supported nearly 12,000 children to move from harmful institutions into safe, caring family environments.

Priorities and Achievements for 2013-in detail (continued)
- In Moldova, the Lumos team helped the Government to ensure that money saved
from institutions, under the Ministry of Education, was ring-fenced by the Ministry of Finance and transferred to mainstream schools. This meant that from 1 January 2013, 40% of schools had funds to assign support teachers for working with children with special educational needs, including children who have previously been institutionalised. In 2010, there were very few children with special educational needs in Moldovan schools; by the end of 2013 there were around 3,500 children.
- In Bulgaria, the Government has received financial assistance from five major EU funding sources. Coordinating these funds is vital; the risk, otherwise, is a fragmented and inefficient use of the money. In 2013, Lumos worked with the authorities in Dobrich and Varna —the two 'demonstration areas' in the east of the country —to carry out strategic reviews. These helped the authorities plan the health, education and social services they would need to replace all residential institutions and to ensure the new systems could be financially sustained in years to come. Lumos also supported the creation of Childhood 2025, an active group of NGOs in Bulgaria working to achieve a Dl programme.
- Lumos' small Ukraine team worked with local partners and regional authorities to assess the number of children in institutions and the reasons for their institutionalisation. There is a growing acceptance nationally of the case for deinstitutionalisation.

At a European level, in 2013 we saw the results of four years of advocacy —by a coalition of groups, with Lumos playing a leading role —to ensure that EU Structural Funds for 'social cohesion' purposes in Member States must be used to create family and community-based care, not to build or renovate institutions. underpinning that principle were passed by the European Parliament in November
2013. By that time, however, a long period of awareness-raising
on this issue meant officials to the extent that more than 6350 million in Structural Funding was granted on the basis that it would
support Dl. Lumos and others will continue their advocacy to ensure that Member States receiving EU funds abide by the pro-Dl 'conditions' attached to them. In November 2013, Lumos co-hosted a conference at the European Parliament, with
that we had already influenced European Commission
Adam Kosa MEP, which brought together a number of those involved advocacy so far.

+ The EU is the world's largest donor of aid for humanitarian and development purposes and Lumos, in 2014 and beyond, will work with the European Commission and Parliament to ensure the pro-Dl principle established for Member States is applied consistently across other categories of nation, outside Member States, which may receive aid funds —in the wider European region and worldwide. The influence of the European principle may reach even further. In 2013, Lumos became a key member of the Global Alliance for Children, whose partners include the US
Agency for International Development, the World Bank and large aid foundations in the US, Sweden and Switzerland. Lumos will work to ensure that the spirit of the principle established in the EU influences the decisions of these huge international funders —with the aim of supporting community services as opposed to institutions and so-called orphanages around the world.

J.K. Rowling has agreed that the money Lumos holds in reserves, primarily royalties from the sales of The Tales of Beedle the Bard, will be used to fund Lumos' core costs of administration and fund raising. In this way, 100% of money donated to Lumos or raised through fundraising activities will go directly towards Lumos' programmes.

J.K. Rowling —Lumos founder and Chair of Trustees - hosted a special family fundraising evening at the Warner Bros. Studio Tour —The Making of Harry Potter, which raised over 61 million in aid of Lumos. Sotheby's in London also auctioned the Lumos Maxima bracelet, a bespoke sterling silver charm bracelet based on designs by J.K. Rowling and inspired by her Harry Potter books. The auction raised 620, 000 for Lumos.

Lumos' Founder, J.K. Rowling, ended an eight-year tenure as Chair of the Board of Trustees and took up the new position of President of Lumos at the end of 2013. Neil Blair took up the post of Chair from 2014. Danny Cohen, Director of Television for the BBC, was appointed to the Lumos Board of Trustees

During 2013, Lumos continued to play an active part in the European Expert Group on the Transition to Community Care. The Guidelines and Toolkit on Deinstitutionalisation, which the group generated, are now available in 14 different languages.

Work with the UN Global Partnership for Children with Disabilities began, connecting Lumos with many other NGOs working in this field.

Plans for 2014 and beyond
Many countries in Europe now have Dl programmes in place to move from institutional to community-based care. With the precedent set for funding for Member States, through the Structural Fund Regulations, this principle of family based care should now be applicable to other countries who benefit from the EU through humanitarian aid and development purposes (E27bn available between 2014-2020).
This is why Lumos, in 2014 and beyond, will work with the European Commission and Parliament to ensure the principle is applied consistently across three other categories of nation, outside Member States, which may receive aid funds - pre-accession states in various stages of preparation for potential entry into the EU; 'neighbourhood' region states, including former Soviet countries as well as some in the Middle East/North Africa region; and developing countries in Africa, Asia and Latin America.
Whilst we recognise that a tipping point has been reached in Europe (and there is clearly still much to do in order to support countries through the Dl process), and also that in many countries in Europe rates of child institutionalisation are stabilising and reducing, the opposite is true in other parts of the world. In order to end the institutionalisation of children worldwide by 2040, Lumos must focus its efforts in 2014 to look globally at this issue, and take our mission and expertise outside Europe.

Restricted Funds: 475171 Pound fromCommission grant

Incoming resources

European Commission (EU)

Leonardo Grant (EU?)

Shunts for Romanian children

Supporting emergency
intervention in Bulgaria and
Ukraine

Reintegrating a child into a
family

Helping severely disabled
children experience life outside
an institution

Contribution to a special
education unit for severely
disabled children

Gifts in kind received towards
a fundraising event